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TED, Mileha Soneji Simple hacks for life with Parkinson's

Mileha Soneji Simple hacks for life with Parkinson's

00:11In India, we have these huge families. I bet a lot of you all must have heard about it. Which means that there are a lot of family events. So as a child, my parents used to drag me to these family events.

00:25But the one thing that I always looked forward to was playing around with my cousins. And there was always this one uncle who used to be there, always ready, jumping around with us, having games for us,making us kids have the time of our lives. This man was extremely successful: he was confident and powerful. But then I saw this hale and hearty person deteriorate in health. He was diagnosed with Parkinson's. 00:55Parkinson's is a disease that causes degeneration of the nervous system, which means that this person who used to be independent suddenly finds tasks like drinking coffee, because of tremors, much more difficult. My uncle started using a walker to walk, and to take a turn, he literally had to take one step at a time, like this, and it took forever. So this person, who used to be the center of attention in every family gathering, was suddenly hiding behind people. He was hiding from the pitiful look in people's eyes. 01:31And he's not the only one in the world. Every year, 60,000 people are newly diagnosed with Parkinson's,and this number is only rising. As designers, we dream that our designs solve these multifaceted problems, one solution that solves it all, but it need not always be like that. You can also target simple problems and create small solutions for them and eventually make a big impact. So my aim here was to not cure Parkinson's, but to make their everyday tasks much more simple, and then make an impact. 02:11Well, the first thing I targeted was tremors, right? My uncle told me that he had stopped drinking coffee or tea in public just out of embarrassment, so, well, I designed the no-spill cup. It works just purely on its form. The curve on top deflects the liquid back inside every time they have tremors, and this keeps the liquid inside compared to a normal cup. But the key here is that it is not tagged as a Parkinson's patient product. It looks like a cup that could be used by you, me, any clumsy person, and that makes it much more comforting for them to use, to blend in. So, well, one problem solved, many more to go.

02:57All this while, I was interviewing him, questioning him, and then I realized that I was getting very superficial information, or just answers to my questions. But I really needed to dig deeper to get a new perspective. So I thought, well, let's observe him in his daily tasks, while he's eating, while he's watching TV. And then, when I was actually observing him walking to his dining table, it struck me, this man who finds it so difficult to walk on flat land, how does he climb a staircase? Because in India we do not have a fancy rail that takes you up a staircase like in the developed countries. One actually has to climb the stairs. So he told me, "Well, let me show you how I do it." Let's take a look at what I saw. 03:47So he took really long to reach this position, and then all this while, I'm thinking, "Oh my God, is he really going to do it? Is he really, really going to do it without his walker?" And then ...

04:01(Laughter)

04:07And the turns, he took them so easily.

04:12So -- shocked? Well, I was too. So this person who could not walk on flat land was suddenly a pro at climbing stairs.

04:24On researching this, I realized that it's because it's a continuous motion. There's this other man who also suffers from the same symptoms and uses a walker, but the moment he's put on a cycle, all his symptoms vanish, because it is a continuous motion. So the key for me was to translate this feeling of walking on a staircase back to flat land. And a lot of ideas were tested and tried on him, but the one that finally worked was this one. Let's take a look. 04:56(Laughter)

04:59(Applause)

05:04He walked faster, right?

05:05(Applause)


Mileha Soneji Simple hacks for life with Parkinson's Mileha Soneji Einfache Hacks für das Leben mit Parkinson Mileha Soneji Απλά κόλπα για τη ζωή με τη νόσο του Πάρκινσον Mileha Soneji Simple hacks for life with Parkinson's Mileha Soneji Trucos sencillos para vivir con Parkinson Mileha Soneji Des astuces simples pour vivre avec la maladie de Parkinson ミレハ・ソネジ パーキンソン病とともに生きるためのシンプル・ハック 밀레하 소네지 파킨슨병을 앓고 있는 사람들을 위한 간단한 생활 습관 Mileha Soneji Proste triki na życie z chorobą Parkinsona Mileha Soneji Truques simples para viver com a doença de Parkinson Милеха Сонеджи Простые советы для жизни с болезнью Паркинсона Mileha Soneji Parkinson ile yaşam için basit ipuçları Mileha Soneji 帕金森病患者的生活简单秘诀 Mileha Soneji 帕金森病患者的生活簡單秘訣

00:11In India, we have these huge families. I bet a lot of you all must have heard about it. Which means that there are a lot of family events. So as a child, my parents used to drag me to these family events.

00:25But the one thing that I always looked forward to was playing around with my cousins. And there was always this one uncle who used to be there, always ready, jumping around with us, having games for us,making us kids have the time of our lives. This man was extremely successful: he was confident and powerful. But then I saw this hale and hearty person deteriorate in health. He was diagnosed with Parkinson's. 00:55Parkinson's is a disease that causes degeneration of the nervous system, which means that this person who used to be independent suddenly finds tasks like drinking coffee, because of tremors, much more difficult. My uncle started using a walker to walk, and to take a turn, he literally had to take one step at a time, like this, and it took forever. So this person, who used to be the center of attention in every family gathering, was suddenly hiding behind people. He was hiding from the pitiful look in people's eyes. 01:31And he's not the only one in the world. Every year, 60,000 people are newly diagnosed with Parkinson's,and this number is only rising. As designers, we dream that our designs solve these multifaceted problems, one solution that solves it all, but it need not always be like that. You can also target simple problems and create small solutions for them and eventually make a big impact. So my aim here was to not cure Parkinson's, but to make their everyday tasks much more simple, and then make an impact. 02:11Well, the first thing I targeted was tremors, right? My uncle told me that he had stopped drinking coffee or tea in public just out of embarrassment, so, well, I designed the no-spill cup. It works just purely on its form. The curve on top deflects the liquid back inside every time they have tremors, and this keeps the liquid inside compared to a normal cup. But the key here is that it is not tagged as a Parkinson's patient product. It looks like a cup that could be used by you, me, any clumsy person, and that makes it much more comforting for them to use, to blend in. So, well, one problem solved, many more to go.

02:57All this while, I was interviewing him, questioning him, and then I realized that I was getting very superficial information, or just answers to my questions. But I really needed to dig deeper to get a new perspective. So I thought, well, let's observe him in his daily tasks, while he's eating, while he's watching TV. And then, when I was actually observing him walking to his dining table, it struck me, this man who finds it so difficult to walk on flat land, how does he climb a staircase? Because in India we do not have a fancy rail that takes you up a staircase like in the developed countries. One actually has to climb the stairs. So he told me, "Well, let me show you how I do it." Let's take a look at what I saw. 03:47So he took really long to reach this position, and then all this while, I'm thinking, "Oh my God, is he really going to do it? Is he really, really going to do it without his walker?" And then ...

04:01(Laughter)

04:07And the turns, he took them so easily.

04:12So -- shocked? Well, I was too. So this person who could not walk on flat land was suddenly a pro at climbing stairs.

04:24On researching this, I realized that it's because it's a continuous motion. There's this other man who also suffers from the same symptoms and uses a walker, but the moment he's put on a cycle, all his symptoms vanish, because it is a continuous motion. So the key for me was to translate this feeling of walking on a staircase back to flat land. And a lot of ideas were tested and tried on him, but the one that finally worked was this one. Let's take a look. 04:56(Laughter)

04:59(Applause)

05:04He walked faster, right?

05:05(Applause)